1a7303aa-c87a-416c-bc5b-d6d91c56dd9aQ1 — 1st Quarter - ReportGovernment Affairs and Consulting
Development and commercialization of therapeutic drug products that treat rare diseases.
HCR — Health IssuesLobbying for continued funding from the government for rare disease research and development, including through the Rare Pediatric Disease Designation and Priority Review Voucher Programs; advocating for greater awareness about the rare disease community for doctors via the Give Kids a Chance Act.
Government entities lobbied: HOUSE OF REPRESENTATIVES; SENATE
MED — Medical/Disease Research/Clinical LabsLobbying for continued funding from the government for rare disease research and development, including through the Rare Pediatric Disease Designation and Priority Review Voucher Programs; advocating for greater awareness about the rare disease community for doctors via the Give Kids a Chance Act.
Government entities lobbied: HOUSE OF REPRESENTATIVES; SENATE
PHA — PharmacyLobbying for continued funding from the government for rare disease research and development, including through the Rare Pediatric Disease Designation and Priority Review Voucher Programs; advocating for greater awareness about the rare disease community for doctors via the Give Kids a Chance Act.
Government entities lobbied: HOUSE OF REPRESENTATIVES; SENATE
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