1st Quarter - Report · 2026

Filing UUID: 2ccaaa08-8c15-423c-bbe5-4d5458fc50d4
Type: Q1 — 1st Quarter - Report
Period: first_quarter
Year: 2026
Posted: 2026-04-20 14:06:27
Income (reported): —
Expenses (reported): $70,000
Expenses method: A
Filing document: Open on lda.senate.gov

Registrant (lobbying firm)

EVERYLIFE FOUNDATION FOR RARE DISEASES

Nonprofit, nonpartisan organization dedicated to empowering rare disease patient community

Contact: ANNIE KENNEDY
Phone: +1 202-697-7273
Address: zip:20005, city:Washington, state:DC, street:1012 14th NW, Suite 500

Client

EVERYLIFE FOUNDATION FOR RARE DISEASES

State: DC
Country: US
Government-entity client: false
Effective date: 2021-04-01

Issues lobbied + lobbyists (1)

`HCR` — Health Issues

S. 822, H.R. 1532 - Scientific EXPERT Act of 2025; S. 932, H.R. 1262 - Give Kids a Chance Act of 2025; S. 752, H.R. 1509 - Accelerating Kids Access to Care Act; H.R. 4709 - Newborn Screening Saves Lives Reauthorization Act of 2025; FY 2027 Appropriations

Lobbyists:

Government entities lobbied: HOUSE OF REPRESENTATIVES; SENATE

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1st Quarter - Report · 2026

HCR — Health Issues

`HCR` — Health Issues