A 1296 — Establishes the rare disease advisory council
Congress · introduced 2025-01-09
Establishes the rare disease advisory council to identify best practices, raise awareness regarding rare diseases, evaluate barriers to access to care, and to make recommendations to the legislature and the governor.
Latest action: 2026-01-12 — ASSEMBLY_FLOOR
Sponsors
- Amy Paulin (—, NY-88) — sponsor · 2025-01-09
- Nader Sayegh (—, NY-90) — cosponsor · 2025-01-09
- Nikki Lucas (—, NY-60) — cosponsor · 2025-01-09
- Joe DeStefano (—, NY-3) — cosponsor · 2025-01-09
- John T. McDonald III (—, NY-108) — cosponsor · 2025-01-09
- Steven Otis (—, NY-91) — cosponsor · 2025-01-09
- David Weprin (—, NY-24) — cosponsor · 2025-01-09
- Samuel Pirozzolo (—, NY-63) — cosponsor · 2025-01-09
- Daniel Norber (—, NY-16) — cosponsor · 2025-01-09
- Michael Novakhov (—, NY-45) — cosponsor · 2025-01-09
- Lester Chang (—, NY-49) — cosponsor · 2025-01-09
- George Alvarez (—, NY-78) — cosponsor · 2025-01-09
- Jeffrey Dinowitz (—, NY-81) — cosponsor · 2025-01-09
- Erik Dilan (—, NY-54) — cosponsor · 2025-01-09
- Linda Rosenthal (—, NY-67) — cosponsor · 2025-01-09
- Aron Wieder (—, NY-97) — cosponsor · 2025-01-09
- Brian Manktelow (—, NY-130) — cosponsor · 2025-01-09
- Angelo J. Morinello (—, NY-145) — cosponsor · 2025-01-09
- Joe Angelino (—, NY-121) — cosponsor · 2025-01-09
- Rebecca Kassay (—, NY-4) — cosponsor · 2025-01-09
- William Colton (—, NY-47) — cosponsor · 2025-01-09
- John Lemondes (—, NY-126) — cosponsor · 2025-01-09
- Judy Griffin (—, NY-21) — cosponsor · 2025-01-09
- Joseph Sempolinski (—, NY-148) — cosponsor · 2025-01-09
- Albert A. Stirpe (—, NY-127) — cosponsor · 2025-01-09
- Michael Durso (—, NY-9) — cosponsor · 2025-01-09
- John K. Mikulin (—, NY-17) — cosponsor · 2025-01-09
- MaryJane Shimsky (—, NY-92) — cosponsor · 2025-01-09
Action timeline
- · assembly — REFERRED TO HEALTH
- · assembly — AMEND AND RECOMMIT TO HEALTH
- · assembly — PRINT NUMBER 1296A
- · assembly — REPORTED REFERRED TO WAYS AND MEANS
- · assembly — REPORTED REFERRED TO RULES
- · assembly — REPORTED
- · assembly — RULES REPORT CAL.291
- · assembly — ORDERED TO THIRD READING RULES CAL.291
- · assembly — SUBSTITUTED BY S1287A
- · assembly — ORDERED TO THIRD READING CAL.47
- · assembly — AMENDED ON THIRD READING 1296B
- · assembly — SUBSTITUTED BY S1287B
Text versions
- Introduced · 2025-01-09 — HTML · Text
- Amendment A · 2025-01-29 — HTML · Text
- Amendment B · 2026-01-12 — HTML · Text
Connected on the graph
Inbound (28)
| date | from | type | amount | role | source |
|---|---|---|---|---|---|
| 2025-01-09 | Linda Rosenthal | cosponsor_of_bill | — | cosponsor | sponsorship |
| 2025-01-09 | Rebecca Kassay | cosponsor_of_bill | — | cosponsor | sponsorship |
| 2025-01-09 | Daniel Norber | cosponsor_of_bill | — | cosponsor | sponsorship |
| 2025-01-09 | John T. McDonald III | cosponsor_of_bill | — | cosponsor | sponsorship |
| 2025-01-09 | John Lemondes | cosponsor_of_bill | — | cosponsor | sponsorship |
| 2025-01-09 | Steven Otis | cosponsor_of_bill | — | cosponsor | sponsorship |
| 2025-01-09 | David Weprin | cosponsor_of_bill | — | cosponsor | sponsorship |
| 2025-01-09 | Brian Manktelow | cosponsor_of_bill | — | cosponsor | sponsorship |
| 2025-01-09 | MaryJane Shimsky | cosponsor_of_bill | — | cosponsor | sponsorship |
| 2025-01-09 | Joe Angelino | cosponsor_of_bill | — | cosponsor | sponsorship |
| 2025-01-09 | Albert A. Stirpe | cosponsor_of_bill | — | cosponsor | sponsorship |
| 2025-01-09 | John K. Mikulin | cosponsor_of_bill | — | cosponsor | sponsorship |
| 2025-01-09 | Erik Dilan | cosponsor_of_bill | — | cosponsor | sponsorship |
| 2025-01-09 | Joe DeStefano | cosponsor_of_bill | — | cosponsor | sponsorship |
| 2025-01-09 | Michael Durso | cosponsor_of_bill | — | cosponsor | sponsorship |
| 2025-01-09 | Michael Novakhov | cosponsor_of_bill | — | cosponsor | sponsorship |
| 2025-01-09 | Nader Sayegh | cosponsor_of_bill | — | cosponsor | sponsorship |
| 2025-01-09 | Nikki Lucas | cosponsor_of_bill | — | cosponsor | sponsorship |
| 2025-01-09 | Joseph Sempolinski | cosponsor_of_bill | — | cosponsor | sponsorship |
| 2025-01-09 | Judy Griffin | cosponsor_of_bill | — | cosponsor | sponsorship |
| 2025-01-09 | Jeffrey Dinowitz | cosponsor_of_bill | — | cosponsor | sponsorship |
| 2025-01-09 | Aron Wieder | cosponsor_of_bill | — | cosponsor | sponsorship |
| 2025-01-09 | George Alvarez | cosponsor_of_bill | — | cosponsor | sponsorship |
| 2025-01-09 | William Colton | cosponsor_of_bill | — | cosponsor | sponsorship |
| 2025-01-09 | Lester Chang | cosponsor_of_bill | — | cosponsor | sponsorship |
| 2025-01-09 | Samuel Pirozzolo | cosponsor_of_bill | — | cosponsor | sponsorship |
| 2025-01-09 | Angelo J. Morinello | cosponsor_of_bill | — | cosponsor | sponsorship |
| 2025-01-09 | Amy Paulin | sponsor_of_bill | — | sponsor | sponsorship |
Who matters
Members ranked by combined influence on this bill: role (sponsor 5 / cosponsor 1), capped speech count from the Congressional Record, and recorded-vote engagement.
| # | Member | Role | Speeches | Voted | Score |
|---|---|---|---|---|---|
| 1 | Amy Paulin (—, state_lower NY-88) | sponsor | 0 | — | 5 |
| 2 | Albert A. Stirpe (—, state_lower NY-127) | cosponsor | 0 | — | 1 |
| 3 | Angelo J. Morinello (—, state_lower NY-145) | cosponsor | 0 | — | 1 |
| 4 | Aron Wieder (—, state_lower NY-97) | cosponsor | 0 | — | 1 |
| 5 | Brian Manktelow (—, state_lower NY-130) | cosponsor | 0 | — | 1 |
| 6 | Daniel Norber (—, state_lower NY-16) | cosponsor | 0 | — | 1 |
| 7 | David Weprin (—, state_lower NY-24) | cosponsor | 0 | — | 1 |
| 8 | Erik Dilan (—, state_lower NY-54) | cosponsor | 0 | — | 1 |
| 9 | George Alvarez (—, state_lower NY-78) | cosponsor | 0 | — | 1 |
| 10 | Jeffrey Dinowitz (—, state_lower NY-81) | cosponsor | 0 | — | 1 |
| 11 | Joe Angelino (—, state_lower NY-121) | cosponsor | 0 | — | 1 |
| 12 | Joe DeStefano (—, state_lower NY-3) | cosponsor | 0 | — | 1 |
| 13 | John K. Mikulin (—, state_lower NY-17) | cosponsor | 0 | — | 1 |
| 14 | John Lemondes (—, state_lower NY-126) | cosponsor | 0 | — | 1 |
| 15 | John T. McDonald III (—, state_lower NY-108) | cosponsor | 0 | — | 1 |
| 16 | Joseph Sempolinski (—, state_lower NY-148) | cosponsor | 0 | — | 1 |
| 17 | Judy Griffin (—, state_lower NY-21) | cosponsor | 0 | — | 1 |
| 18 | Lester Chang (—, state_lower NY-49) | cosponsor | 0 | — | 1 |
| 19 | Linda Rosenthal (—, state_lower NY-67) | cosponsor | 0 | — | 1 |
| 20 | MaryJane Shimsky (—, state_lower NY-92) | cosponsor | 0 | — | 1 |
| 21 | Michael Durso (—, state_lower NY-9) | cosponsor | 0 | — | 1 |
| 22 | Michael Novakhov (—, state_lower NY-45) | cosponsor | 0 | — | 1 |
| 23 | Nader Sayegh (—, state_lower NY-90) | cosponsor | 0 | — | 1 |
| 24 | Nikki Lucas (—, state_lower NY-60) | cosponsor | 0 | — | 1 |
| 25 | Rebecca Kassay (—, state_lower NY-4) | cosponsor | 0 | — | 1 |
Predicted vote
Aggregated from: actual roll-call votes (when present) → sponsor → cosponsor → party median (predicts YES when ≥25% of the caucus sponsored/cosponsored). Each row labels its confidence tier so you can see why a position was predicted.
0 predicted yes (0%) · 543 predicted no (100%) · 0 unknown (0%)
By party: · R: 0 yes / 277 no · D: 0 yes / 263 no · I: 0 yes / 3 no
Activity
Every typed-graph event involving this entity, newest first. Each row is one edge in the influence graph; click the date to jump to its provenance.
- 2025-01-09 · cosponsored by Michael Durso (cosponsor) · sponsorship
- 2025-01-09 · cosponsored by Erik Dilan (cosponsor) · sponsorship
- 2025-01-09 · cosponsored by Judy Griffin (cosponsor) · sponsorship
- 2025-01-09 · cosponsored by David Weprin (cosponsor) · sponsorship
- 2025-01-09 · cosponsored by Lester Chang (cosponsor) · sponsorship
- 2025-01-09 · cosponsored by George Alvarez (cosponsor) · sponsorship
- 2025-01-09 · cosponsored by Steven Otis (cosponsor) · sponsorship
- 2025-01-09 · cosponsored by Joe Angelino (cosponsor) · sponsorship
- 2025-01-09 · cosponsored by Linda Rosenthal (cosponsor) · sponsorship
- 2025-01-09 · cosponsored by John Lemondes (cosponsor) · sponsorship
- 2025-01-09 · cosponsored by Samuel Pirozzolo (cosponsor) · sponsorship
- 2025-01-09 · cosponsored by William Colton (cosponsor) · sponsorship
- 2025-01-09 · cosponsored by Jeffrey Dinowitz (cosponsor) · sponsorship
- 2025-01-09 · cosponsored by Rebecca Kassay (cosponsor) · sponsorship
- 2025-01-09 · cosponsored by Joseph Sempolinski (cosponsor) · sponsorship
- 2025-01-09 · cosponsored by Daniel Norber (cosponsor) · sponsorship
- 2025-01-09 · cosponsored by Angelo J. Morinello (cosponsor) · sponsorship
- 2025-01-09 · cosponsored by Albert A. Stirpe (cosponsor) · sponsorship
- 2025-01-09 · cosponsored by Brian Manktelow (cosponsor) · sponsorship
- 2025-01-09 · cosponsored by John T. McDonald III (cosponsor) · sponsorship
- 2025-01-09 · cosponsored by John K. Mikulin (cosponsor) · sponsorship
- 2025-01-09 · cosponsored by Nikki Lucas (cosponsor) · sponsorship
- 2025-01-09 · cosponsored by Joe DeStefano (cosponsor) · sponsorship
- 2025-01-09 · cosponsored by Aron Wieder (cosponsor) · sponsorship
- 2025-01-09 · sponsored by Amy Paulin (sponsor) · sponsorship
- 2025-01-09 · cosponsored by MaryJane Shimsky (cosponsor) · sponsorship
- 2025-01-09 · cosponsored by Michael Novakhov (cosponsor) · sponsorship
- 2025-01-09 · cosponsored by Nader Sayegh (cosponsor) · sponsorship