HR 470 — A Resolution designating May 15, 2026, as "Prader Willi Syndrome Awareness Day" in Pennsylvania.

PRINTER'S NO.   3151

                  THE GENERAL ASSEMBLY OF PENNSYLVANIA



           HOUSE RESOLUTION
              No. 470
                                                Session of
                                                  2026

     INTRODUCED BY KRUEGER, HILL-EVANS, VENKAT, McNEILL, HOHENSTEIN,
        FREEMAN, RIVERA, SANCHEZ, NEILSON AND PASHINSKI,
        APRIL 7, 2026

     REFERRED TO COMMITTEE ON HEALTH, APRIL 8, 2026


                                 A RESOLUTION
 1   Designating May 15, 2026, as "Prader Willi Syndrome Awareness
 2      Day" in Pennsylvania.
 3      WHEREAS, Prader Willi Syndrome (PWS) is a rare and complex
 4   genetic disorder that affects multiple systems of the body and
 5   requires lifelong medical care, specialized support and strong
 6   community understanding; and
 7      WHEREAS, This syndrome impacts more than 30 million citizens
 8   of the United States; and
 9      WHEREAS, One of the hallmark symptoms of the syndrome is
10   hyperphagia, which means that individuals with PWS never feel
11   full after eating, which often leads to obesity and
12   complications from obesity; and
13      WHEREAS, Other common symptoms include poor muscle tone,
14   distinct facial features, poor sucking reflex, behavioral
15   problems and cognitive impairment; and
16      WHEREAS, Raising awareness is essential to improving early
17   diagnosis, access to appropriate care and the overall quality of
 1   life for individuals and families impacted by PWS; and
 2         WHEREAS, Regularly attending well-baby doctor's appointments
 3   may help identify the syndrome earlier and lead to early
 4   intervention to help the family navigate the complexity of PWS;
 5   and
 6         WHEREAS, Individuals can be carriers of PWS, meaning that the
 7   individual may not show symptoms while the chromosomal
 8   abnormality can be passed to the individual's children without
 9   knowing of the risk; and
10         WHEREAS, May is recognized as Prader Willi Syndrome Awareness
11   Month each year to raise awareness and demonstrate support for
12   those in our communities who are suffering from the syndrome;
13   and
14         WHEREAS, This year is especially meaningful, as we celebrate
15   the formation of the Prader-Willi Alliance of Pennsylvania, a
16   newly established nonprofit organization dedicated to supporting
17   individuals with PWS and their families through education,
18   advocacy and connection across this Commonwealth; and
19         WHEREAS, The organization is committed to working alongside
20   families, health care providers, educators and policymakers to
21   ensure equitable access to services and informed care; therefore
22   be it
23         RESOLVED, That the House of Representatives designate May 15,
24   2026, as "Prader Willi Syndrome Awareness Day" in Pennsylvania.




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