Legislation directly impacting disability and rare disease communities; Issues around the funding of rare disease research
Lobbyists: mr MICHAEL A MEROLA (covered position: Deputy CoS, Sen. Torricelli); ms ELIZABETH CONNOLLY (covered position: Assistant Director of Public Health, Office of National Drug Control Policy); DONNA MULLINS (covered position: CoS/Approps Staff, Rep. Frelinghuysen and Rep. Dean Gallo; CoS Senator Chiesa)
Government entities lobbied:HOUSE OF REPRESENTATIVES; SENATE
BUD — Budget/Appropriations
Funding for Fragile X and related initiates
Lobbyists: DONNA MULLINS (covered position: CoS/Approps Staff, Rep. Frelinghuysen and Rep. Dean Gallo; CoS Senator Chiesa); ms ELIZABETH CONNOLLY (covered position: Assistant Director of Public Health, Office of National Drug Control Policy); mr MICHAEL A MEROLA (covered position: Deputy CoS, Sen. Torricelli)
Government entities lobbied:HOUSE OF REPRESENTATIVES; SENATE
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