Advocating for funding for (1) a public awareness and provider education program at the CDC on POTS and similar forms of dysautonomia, (2) an infection associated chronic conditions office at the NIH to coordinate research, and (3) funding for research to examine the correlation between POTS and Long COVID.
Government entities lobbied:Health & Human Services, Dept of (HHS); HOUSE OF REPRESENTATIVES; Natl Institutes of Health (NIH); SENATE
MED — Medical/Disease Research/Clinical Labs
Advocate for NIH research funding for dysautonomia disorders, specifically Postural Orthostatic Tachycardia Syndrome (POTS) and funding to examine the correlation between POTS and Long COVID. Supporting establishment of an infection associated chronic conditions office at the NIH to coordinate research. Asking for continued support for the Autonomic Medicine Section at the NIH.
Government entities lobbied:Health & Human Services, Dept of (HHS); HOUSE OF REPRESENTATIVES; Natl Institutes of Health (NIH); SENATE
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