e2d6803c-17c1-4bf0-a035-094648a14c9eQ1 — 1st Quarter - ReportNATIONAL ORGANIZATION FOR RARE DISORDERS, INC. (NORD)
NATIONAL ORGANIZATION FOR RARE DISORDERS INC (NORD)
HCR — Health IssuesRare Disease Initiatives. Priority Review Voucher Reauthorization. Affordable Care Act (ACA) Issues and Enhancements. Telehealth.
Lobbyists: mr MASON OLIVER BARRETT; ALLISON HERRITY
Government entities lobbied: Centers For Medicare and Medicaid Services (CMS); HOUSE OF REPRESENTATIVES; SENATE
MMM — Medicare/MedicaidMedicare / Medicaid issues impacting patients with rare diseases. Inflation Reduction Act Implementation.
Lobbyists: mr MASON OLIVER BARRETT
Government entities lobbied: Centers For Medicare and Medicaid Services (CMS); HOUSE OF REPRESENTATIVES; SENATE
PHA — PharmacyPharmaceutical issues impacting patients with rare diseases. PRV Reauthorization. Inflation Reduction Act Implementation.
Lobbyists: mr MASON OLIVER BARRETT; ALLISON HERRITY
Government entities lobbied: Centers For Medicare and Medicaid Services (CMS); HOUSE OF REPRESENTATIVES; SENATE
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