Issues lobbied + lobbyists
MMM — Medicare/Medicaid
Implementation of H.R. 1, One Big Beautiful Bill Act Reimbursement for hemophilia services and treatments in Medicare Reimbursement for hemophilia services and treatments in Medicaid Preserving and expanding access to Medicaid Issues related to 1115 of the Social Security Act; policies related to work requirements in Medicaid Comments on RE: CMS-5545-P: Global Benchmark for Efficient Drug Pricing (GLOBE) Model Comments on CMS-5546-P: Guarding U.S. Medicare Against Rising Drug Costs (GUARD) Model
Government entities lobbied: Centers For Medicare and Medicaid Services (CMS); HOUSE OF REPRESENTATIVES; SENATE
HCR — Health Issues
Blood and plasma safety and awareness Bleeding disorders awareness
Government entities lobbied: HOUSE OF REPRESENTATIVES; SENATE
INS — Insurance
Implementation of H.R. 1, One Big Beautiful Bill Act Implementation of the Affordable Care Act The HELP Copays Act (S. 864, H.R. 6423) Coverage of hemophilia treatments and services in private insurance plans, including the alternative funding model Policies related to copay accumulator adjustor and maximizer programs Policies related to the extension of enhanced advanced premium tax credits, including HR 247, HR 1, HR 5371, S 46, HR 1834 Comments on Proposed Rule: Patient Protection and Affordable Care Act; HHS Notice of Benefit and Payment Parameters for 2027; and Basic Health Program (CMS-9883-P)
Government entities lobbied: Centers For Medicare and Medicaid Services (CMS); Federal Trade Commission (FTC); Health & Human Services, Dept of (HHS); HOUSE OF REPRESENTATIVES; Internal Revenue Service (IRS); Labor, Dept of (DOL); SENATE; Treasury, Dept of
BUD — Budget/Appropriations
Funding for federal hemophilia programs in FY26 and FY27 House and Senate Labor-HHS Appropriations bills NIH FY26 and FY27 appropriations
Government entities lobbied: Health & Human Services, Dept of (HHS); HOUSE OF REPRESENTATIVES; SENATE
PHA — Pharmacy
Issues related to hemophilia treatments, specialty pharmacies and the 340B drug purchasing program
Government entities lobbied: HOUSE OF REPRESENTATIVES; SENATE
MED — Medical/Disease Research/Clinical Labs
Hemophilia research, prevention, surveillance and service programs and issues; advancing care for women and girls with bleeding disorders
Government entities lobbied: Food & Drug Administration (FDA); HOUSE OF REPRESENTATIVES; SENATE