Issues lobbied + lobbyists
HCR — Health Issues
Sickle Cell Disease and Other Heritable Blood Disorders Research, Surveillance, Prevention, and Treatment Act of 2023 (H.R. 1796/S. 735)
Lobbyists:- ELLEN RIKER [new]
- LESLIE BRADY — covered position: Health Policy Advisor/Legislative Assistant, Rep. Brian Higgins [new]
Government entities lobbied: Health & Human Services, Dept of (HHS); HOUSE OF REPRESENTATIVES; SENATE
MMM — Medicare/Medicaid
Engagement with the Center for Medicare and Medicaid Innovation on the Cell & Gene Therapy Access Model Sickle Cell Disease Comprehensive Care Act (S. 721/H.R. 5178) Medicaid eligibility and coverage for needed services for people living with sickle cell disease Implementation of H.R. 1, One Big Beautiful Bill Act Issues relating to medical listings of impairment for sickle cell disease for SSDI and SSI
Government entities lobbied: Centers For Medicare and Medicaid Services (CMS); Health & Human Services, Dept of (HHS); HOUSE OF REPRESENTATIVES; SENATE; Social Security Administration (SSA)
BUD — Budget/Appropriations
Funding for federal sickle cell disease programs FY26 House and Senate Labor-HHS Appropriations bills FY27 House and Senate Labor-HHS Appropriations H.R. 8067, Candis King Hope for Sickle Cell Families Act
Government entities lobbied: Health & Human Services, Dept of (HHS); HOUSE OF REPRESENTATIVES; SENATE
INS — Insurance
Implementation of H.R. 1, One Big Beautiful Bill Act Policies related to the extension of enhanced advanced premium tax credits, including HR 247, HR 1, HR 5371, S 46.
Government entities lobbied: Centers For Medicare and Medicaid Services (CMS); HOUSE OF REPRESENTATIVES; SENATE